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Patient section

Patient Associations

A list of Pulmonary arterial hypertension (PAH) patient associations from around the world:

PHA Europe (e-mail only)
International non-profit association to increase awareness and education, to achieve best possible standards of care in each country in Europe, to promote actions in favour of research on pulmonary hypertension and to share information between member organisations and patients.
info@phaeurope.org
 

PHA International
As an integral department of the Pulmonary Hypertension Association (PHA), PHA International acts as a hub for international PAH work.  The mission of the PHA is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness
http://www.PHAssociation.org/intl

 

Argentina (e-mail only)
PHA Argentina
mdiez@ffavaloro.org

   
Austria
PHA Austria
http://www.phaaustria.org
   

Australia
PHA Australia
http://www.phaaustralia.com.au

North South Wales Support Group (e-mail only)
jenniferlouisehodges@hotmail.com

 

Belgium
PH vzw Belgium
www.ph-vzw.be

 

Brazil
Associacao Brasileira de Amigos e Familiares de Portadores de Hipertensao Arterial Pulmonar (ABRAF)
www.respirareviver.org.br

 

Canada
Pulmonary Hypertension Association of Canada (PHA Canada)
www.phacanada.ca

Canada - Alberta
Calgary Pulmonary Hypertension Support Group (e-mail only)
sharonproudfoot@yahoo.com

Edmonton Pulmonary Hypertension Support Group (e-mail only)
havinfun667@hotmail.com

University of British Columbia PH Society (UBCPHS) (e-mail only)
ania_2@hotmail.com

Canada - Manitoba
The Manitoba Pulmonary Hypertension Support Group
http://ca.geocities.com/mb_ph_group/

Canada - New Brunswick
New Brunswick PH Society (NBPHS)
www.nbphs.org

Canada - Ontario (e-mail only)
The Pulmonary Hypertension Society of Canada
phs@mnsi.net

Canada - Quebec
PPH Quebec Support Group
http://groups.msn.com/PPHQuebec

 
China
PHA - China
www.phachina.com
 
Columbia
Fundación Colombiana de Hipertension Pulmonar
www.hipertension-pulmonar.org
   
Czech Republic
Sdruzeni Pacientu s Plicni Hypertenszi
www.pph.cz
  
France
HTAP (HyperTension Artérielle Pulmonaire) - France
http://www.htapfrance.com
   
Germany
Pulmonal hypertonie e.v. - Germany
http://www.phev.de/
 

Greece
PHA Greece (e-mail only)
giannoulis_phagr@yahoo.gr

   
Ireland
Pulmonary Hypertension Association - Ireland
http://www.mater.ie/pha-ireland/
   

Israel
PH Israel (Pulmonary Hypertension Israel)
www.phassociation.org/intl/Israel

   

Italy
AMIP (Associazione Malati Ipertensione Polmonare) - Rome
www.assoamip.net/

AIPI (Associazione Ipertensione Polmonare Italiana) - Milan
www.aipiitalia.org/

   
Japan
PHA - Japan
http://www.pha-japan.ne.jp/
 
Latin America (US reg.)
La Sociedad Latina de Hipertension Pulmonar
http://www.sociedadlatinahp.org/
   

Mexico
AMHAP (Asociacion Mexicana de Hipertension Arterial Pulmonar) - Mexico
http://hapmx.ods.org

   
The Netherlands
PHA - Nederland
www.pha-nl.com
 
Norway
PHA Norway
www.pha-no.com
   

Peru (e-mail only)
Asociación Peruana de Hipertension Pulmonar
marielatc@terra.com.pe

 
Romania
Pulmonary Hypertension Association Romania
www.htap.ro
 
Singapore
Singapore PH Support Group (e-mail only)
smamub@yahoo.com.sg
 
South Africa
Pulmonary Hypertension Association South Africa
www.phsa.co.za
 
Southeast Asia
PHA SEA (e-mail only)
smamub@yahoo.com.sg
 
Spain
Asociación Nacional de Hipertension Pulmonar
www.hipertensionpulmonar.es
 

Sweden
Hjärt- och Lungsjukas Riksförbund
www.hjart-lung.se

Reumatikerförbundet
www.reumatikerforbundet.se

   

Switzerland
HTAP Revivre
www.saph.ch/SuisseRomande

 

Taiwan
Taiwan Foundation for Rare Disorders (TFRD)
www.tfrd.org.tw

 

Turkey
PHA Turkey
www.PHA-Turkey.com

 
UK
Pulmonary Hypertension Association UK
http://www.phassociation.uk.com
   

US
The Pulmonary Hypertension Association (PHA) (USA)
http://phassociation.org/

Pulmonary Hypertension: The Complete Resource (USA)
http://phcentral.org

Scleroderma Foundation USA
http://www.scleroderma.org

International Scleroderma Network (USA)
http://www.sclero.org